Shared Care: how can we do it? Findings from the BHIVA Primary Care Project

Jennifer MacLellan, Maryam Shahmanesh, Surinder Singh, Jackie Morton, Claudia Estcourt, David Asboe

Shared Care: how can we do it? Findings from the BHIVA Primary Care Project There are around 104,000 people living with HIV in the UK and our clinical outcomes are among the best in the world. Almost half of those accessing care are now over 45 and age-related comorbidities such as hyperlipidaemia and hypertension are common. For those whose HIV condition is well controlled, these comorbidities may have a more significant impact on morbidity and mortality than HIV itself. More than ever, we now need to focus on holistic management of healthcare needs that addresses both HIV-related and non-HIV-related health conditions without losing the successes of HIV care. We believe that this can best be achieved by collaboration between primary and specialist care to provide a person-centred, rather than disease-specific, model of care across the life course. However, there is little evidence on how best we can achieve this.

To address this evidence gap, BHIVA commissioned a one-year programme of work with the overarching aim of informing commissioning and delivery of high-quality healthcare for people living with HIV between primary and specialist care across the life course.

We hope that by describing contemporary care models across the UK, matching them with evidence measuring service quality, and then sharing the successful care model configurations, we will support community-based care for people living with HIV through improved integration of care across both primary and specialist services.


BHIVA Primary Care Project Steering Group

Leads

David Asboe (Chair)
Chelsea and Westminster NHS Foundation Trust

Jackie Morton
(Community Lead) Terrence Higgins Trust

Maryam Shahmanesh (HIV Lead)
UCL Institute of Epidemiology and Health Care

Surinder Singh (GP Lead)
Royal Free and University College Medical School

Project facilitator

Jennifer MacLellan
NIHR Clinical Research Network: Thames Valley and South Midlands

Members

Anna Bamford (Non-London-based Community Nurse representative)
Sussex Community NHS Trust

Tristan Barber (BHIVA representative)
Chelsea and Westminster NHS Foundation Trust

Garry Brough (Community: UK-CAB representative)
Positively UK

Claudia Estcourt (BHIVA representative)
Glasgow Caledonian University

Martin Fisher † (BHIVA representative)
Brighton and Sussex University Hospitals NHS Trust

Claire Foreman (NHS England Commissioning)
NHS England

Philippa James (RCGP representative)
Royal College of General Practitioners

Ruth Lowbury MEDFASH
Salamander Trust

Mark Nelson (BHIVA representative)
Chelsea and Westminster NHS Foundation Trust

Tracy Palmer (NHS England Commissioning)
NHS England

Ewen Stewart (RCGP representative)
NHS Lothian

Zoë Warwick (BHIVA representative)
Plymouth Hospital NHS Trust

Shaun Watson (NHIVNA Nurse representative)
Chelsea and Westminster NHS Foundation Trust

 

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Shared Care: how can we do it? Findings from the BHIVA Primary Care Project

Appendices

Appendix 1. BHIVA Primary Care Project interview schedule V1

Appendix 2. GP online survey

Appendix 3. Positively UK quality of care survey

Appendix 4. Quality of care focus group

Appendix 5. Key informant interview participants